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Pediatric Compassionate Care Consortium

Friday, September 29, 2017
Cape Fear Community College
Union Station - 3rd Floor
Wilmington, North Carolina

The Essentials of Community-Based Pediatric Hospice Care

Conference Summary:
Plan to join us for an essential training course on pediatric hospice care. Through a collaborative effort between Coastal Children’s Services and the Pediatric Palliative Care Coalition of North Carolina, a new interactive curriculum is being piloted! Based on needs and issues raised by both referring pediatric institutions and local hospice agencies from across the state, a team of pediatric palliative care and hospice specialists is leading a family-centered effort to increase access to quality, community-based pediatric hospice services. This 1-day training course provides education and teaches the basic skill sets required to (1) make informed referrals to hospice agencies, (2) help children and families make the transition to home hospice services, and (3) provide quality pediatric hospice care in the home setting. The conference is open to anyone who might touch the lives of children and families facing possible terminal illnesses (including, but not limited to, physicians, nurses, social workers, chaplains, child life specialists, respiratory therapist, pharmacists, music therapists, bereavement specialists, and emergency medical services providers). We look forward to seeing you in Wilmington.

8:00–8:10 Welcome and Introductions
Elizabeth Harris, MEd, SPHR, Director, Strategic Development, Coastal Children’s Services;
Maria-Cristina Javier, MD, Medical Director of Education, Coastal Children's Services;
Jeannie Newman, Founder, Children’s Wholistic Comfort Care Network

8:10-8:15 Introducing the Pediatric Palliative Care Coalition of NC
PPCC Co-Chairs: Lily Gillmor, RN, BSN, CHPN, CHPPN, Director,
Transitions Kids; Dan Mackey, MD, FAAP, Medical Director of Post-Acute Services, MyFace2FaceMD

8:15-9:15 Epidemiology and Facing Our Fears
Elisabeth P. Dellon, MD, MPH, Medical Director, Children’s Supportive Care Team, NC Children’s Hospital-UNC; Dan Mackey, MD; Savithri
Nageswaran, MD, MPH, Associate Professor, Pediatrics, Social Sciences & Health Policy, Wake Forest School of Medicine, Pediatric Enhanced Care Program, Brenner Children’s Hospital

9:15-10:15 Symptom Management
Laurie Hicks, MD, Pediatric Palliative Medicine Physician, Pediatric
Advanced Care Team, Levine Children’s Hospital; Dan Mackey, MD;
Patricia S. Vandergrift, DNP, RN, NNP-BC, Perinatal/Neonatal Palliative Care Coordinator, Novant Health Forsyth Medical Center and Wake Forest University Brenner Children’s Hospital

10:15-10:30 Break, visit exhibitors

10:30-11:30 Symptom Management Cont’d: Interactive Skill Sets Training
Kathy A. Robertson, RN, M.Ed, Nurse Educator, Mountain Valley
Hospice & Palliative Care

11:30-12:30 Caring for the Dying Child
Lily Gillmor, RN, BSN, CHPN, CHPPN; Nicole Sartor, RN, MSN, C-PNP, Supportive Care Coordinator, NC Children’s Hospital-UNC

12:30-1:30 Lunch, Visit exhibitors

1:30-2:30 Administrative Issues: Concurrent Care and Staffing
Patti Gasparello, MSW, LCSW, Director, Kids Path, Chaplain and Bereavement Services, Hospice and Palliative Care Center of Alamance Caswell; Marion Taylor, RN, MN, CPNP, Director, Kids Path Hospice and Palliative Care of Greensboro

2:30-4:00: Supporting Families and Staff
Suffering, Grief, Bereavement, Memory-Making, and Self-Care:
Nancy Dias, PhD, RN, CNE, Post-Doctoral Fellow; Jennifer Jones, RN, Pediatric Bereaved Parent Advocate, Care Manager, Community Care of Western NC; Valerie King, Bereaved Parent Advocate;
Jeannie Newman; Kerri Pastor, MSW Intern, Pediatric Advanced Care Team, Levine Children’s Hospital, Carolinas Healthcare; Kathy A. Robertson, Beth Seyda, Bereaved Parent Advocate, Co-Founder and Executive Director, Compassionate Passages, Inc.; Rose Sharpe, MSN, CPNP, Pediatric Nurse Practitioner, Pediatric Palliative Care, Duke University Hospital and School of Medicine, Allie Shukraft, MSW, MAT, Pediatric Advanced Care Team, Levine Children’s Hospital, Carolinas Healthcare; Barrie Smith, Bereaved Parent Advocate; Patricia S. Vandergrift

4:00-4:15 Questions and Wrap-up
Elizabeth Harris, Jeannie Newman
Maria-Cristina Javier, MD, Medical Director of Education, Coastal Children's Services;

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